We are both disabled here and have nobody else at all to rely on

Our care did not happen again today, call dropped at the last moment as the agency has staffing problems and could last all week.  We are both disabled here and have nobody else at all to rely on.  Where do you go when this has been happening for over 2 years and nobody listens or even cares and social workers continue to spout the same old long disproved lies?

 

8 years of no rises in packages and they expect us to buy in the same amount of care at the same rates as 2010, it just does not work and just expected to sit back and accept further cuts when your conditions have significantly worsened and needs have increased.

Is it any wonder my mental health has gone down the pan again?  DLA to PIP had to be taken to tribunal too as their assessor magicked away all my spinal conditions in the report, but not in my spine itself sadly which do show clearly on MRI results provided to them.  How many mental knocks or insults can we take?  I for one of many am losing my will to exist.

G.

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2 thoughts on “We are both disabled here and have nobody else at all to rely on

  1. I wish the SW & Carers would get onto social media & tell their stories too! Lucky to be in Scotland where they are starting to pull Care Services back in house, but there will always be gaps until it is! Private Companies are not subject to Gov disciplines & rules – that is why it has all got in such a mess! Thatcher’s Care in the community was the biggest con – after right to Buy, as they NEVER put the infrastructure in to support it. The Gov separated Care from NHS & vice Versa, they left it up to councils to provide what really should be NHS/Medical care. Then when the councils have to cut cost it happens to the most vulnerable people. My hubby’s PIP assessor said his PTSD was sorted in April 2017..she actually gave a date??? Cannot find ANYTHING in reports from Psych that would lead to that conclusion! Tribunal was a Trial . 1 point. still waiting on full report. The fact we are Co Cares was a problem for Tribunal. how can hubby care for Breast Cancer patient wife and be disabled? but as you say if we don’t ‘care’ for each other ..who does? It is quality of care, not who does it or whether they get paid for it! Hubby was ill before I got cancer, I can’t just stop caring & he can’t suddenly not have health problems! Don’t ;et the b*stards grind you down my friend. You have made it this far. Keep up the fight ..even if in your head for now xx

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