In 2012, my daughter who had been stable for ten years within her support system, was miss matched with a social worker who formed the idea that she would be suited to return to work. Based on the cleanliness of her home, (pre- conceived idea’s of bipolar sufferers seem to be unclean slobs living out of black bags) so on joining my daughter to her out patients appointments, she would sit and roll her eyes when my daughter was explaining how she was feeling (red flags right there) telling her consultant that she had started burning herself again, the consultant based on this social workers input (eye rolling, long sighs) began to reduce my daughters medication.
My daughter weighed 15st at the time, in approx two months she had dropped to 9st and on the 16th of September 2012 she was sectioned under the mental health act. Her son who was 12 yrs at the time was badly affected, he hadn’t witnessed his mother like this before. I became my daughter’s carer soon after, to aid her recovery. My grandson and their dog had to stay with me on and off for weeks while the doctors and support workers nursed her back to health. It’s been six years since this nightmare began and recently she had to go through assessments for her esa and dla on the change over to pip. I had to fight for her money and with the help of her doctor’s won. It has been a soul destroying experience, my daughter has high end bipolar, psycho effective disorder and paranoia. I am now in the same process with one of my sons who has a irreversible neuro degenerative disorder with severe wastage of his right leg. I’m so tired.
The impact on my own health has been shocking, I’ve had atopic/dyshidrotic combination eczema from the age of sixteen, it’s painful nuisance you never get uses to, I have rheumatoid arthritis and IBS too. But in the last six years, I contracted pneumonia in 2014 and still had to fulfill my carers duties, barely able to lift my ton weighted body (I’m 7st 12) but felt like triple that. 6 months later I was diagnosed with high blood pressure. All in a day’s work for a carer according to our government, who’ll now require me at sixty to get a job.