The care agency is contributing to the disabled hell now it seems. Staffing crisis … 5 months I have only been out the house once, I cannot rely on them to turn up cancelling calls last moment as staff off sick or cannot cover my call. I have resorted to online shopping for everything including food causing a huge increase in my bills due to delivery charges for months. The food is frequently not what I have wanted or very poor dates. Bread for the next 3 – 4 days with just 2 days date for an eg. Without this there would be no food to rely upon for 2 disabled people. All my health appointments have had to be cancelled. Finally joined an expensive site to source independent carers to pay out my own pocket to attend some essential appointments delayed since February out of sheer frustration adding to my stress and I shall struggle still with my mental health to cope.
Culminated Friday by my being verbally abused and told it was all my own fault and called inflexible by the agency management because I objected to my call dropped yet again last few hrs before they were due leaving no carer for me to unload and put away the essential and already organised online food shop, when asked if they can ‘do my call another day’. It also means no shower or hair wash for me now for 2 weeks if then.
They threatened to call the police because this had distressed me badly yet again because I refused them permission to call my GP. I lived the evening out cringing at every passing vehicle in case the police were coming to take me away. 2 days later I am still shaking. Is this how care is supposed to be?