In theory I can do things but I am in pain and it takes me ages to do the simplest task. My social worker and I have timed that on average it takes me 3 hours to have a bath, 2 hours to get dressed and 3 hours to wash and hoover the kitchen floor. After that I am exhausted, in tears and often sick. If I wash the kitchen floor I need to go to bed for the rest of the day.
The assessor for PIP told me it does not matter if I am in pain or takes me ages as long as I can do something. I managed to get zero points for everything from an indefinite DLA claim. Lost my carer and cleaner and don’t know what to do now, social worker cannot help as now I am no longer in need of support officially. Waiting for my appeal but I have been warned it could be at the end of 2019. What am I going to do?