Today has been a long day, part of it was taking supplies to Mum, who has been put into respite care.(In the morning I sang about a vulnerable life form, my Mum who is in her last moments of being alive) I was asked to takes new clothes and buy bathroom supplies.
Mum is in Callington which is 20 miles from home and a place that lost it’s railway connection in the 70’s. It meant having to put more petrol in the car to get there, which took away my first hour’s pay at work. I wasn’t able to buy much, the care home asked me for some money so mum could have a haircut, but I couldn’t afford it. l had to pass on the responsibility to a family relative. I don’t know if the care home understood the reasons why I couldn’t help Mum more than I was able to achieve already . There are bus services to the rural town, but I wouldn’t been able to get to work afterwards, because buses are infrequent in Cornwall.
The main thought on the way back was ” Please Cornwall don’t put me into a care home if Mum’s respite becomes permanent. Putting people with disabilities into institutional care is wrong and belongs in the past. Whilst cooking my tea (yes something you can’t do when living in care home) I listened to Eunice Kennedy Shriver and her speech which she made in 1987. Eunice said that you have earned the right to study, work and be anybody’s neighbour , the days of segregation are over.
So please, freedom for disability shouldn’t rely on being able to gain the right degree or to be one of the lucky ones, where an outstanding talent makes you worthy of being accepted. I have no fancy degree (to be fair, l wouldn’t even try because after 40 years I know what I can or cannot do).
Please, please Cornwall help me keep my job, independence and my dignity. In return I will be a Superhero, but I will do it using my own abilities and on my own terms. I’m now taking a break from trying to bring sense to the world to a place where pointless wars over land, sea and air no longer happen. The Special Olympics World Games is in March 2019. Help the Olympic Athletes and join the Inclusion revolution (both Star Trek and the Special Olympics have been around for over half a century, so yes Inclusion has been there waiting patiently for it’s moment.) Now is the moment, year and the decade to make it happen.