PIP assessment in a few words

PIP assessment in a few words.  My daughter took me there, she is my carer. I did not use my wheelchair and walked with two crutches instead. Lots of stupid and irrelevant questions, really tiring, it took me a week to recover from it. I scored 0 points for everything.  They wrote I went there on my own, could walk normally  at normal pace (!!!!), that I could touch the top of my head and my nose and could hold my passport.  Our problem is now that not only I lost my DLA and will have to cut down on everything but my daughter lost her carer’s allowance and has been told she has to look for a job now.

She gave up her job because I was too ill and the unpredictability of my condition meant she had to run home from work so many times because I had fallen or did not answer the phone after a seizure. Her employer was not very understanding and it was very difficult for her.  Doctors had told me I needed supervision anyway.
I have MS, osteoporosis and epilepsy. I have very bad days when I need help to go to the loo, can’t dress myself or even make myself a cup of tea I now wake up at night worrying that I will end up in bed with incontinence pads all day long.

Stella

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