I have to fill out her PIP review forms. She was on lifetime DLA, but lifetime / indefinite / lifelong awards no longer allowed with PIP even with a genetic disability like autism which will never get better, so that means months of preparation each time, hours spent updating all the information. I have a condition which makes it painful for me to sit for too long, so that means hours of pain for me, her carer.
It’s also depressing and for weeks afterwards, because you have to put down everything, every distressing humiliating detail. It feels like a betrayal of her. I thought she would be on DLA for life & I would not have to go through all this again, but under the @Conservatives government, we have to endure this application process every couple of years. I think they must enjoy torturing & humiliating the individuals concerned and their carers via this process.