I suffer from a rare auto immune illness

I suffer from a rare auto immune illness, there is no cure and only one specialist in the country. It does not affect my mobility, my muscles or joints but it attacks my internal organs. I have had several surgical procedures and I am in constant pain, often nearly unbearable. My PIP assessor failed me after a very short physical assessment because my joints and muscles are perfectly fine.

The fact that I am in pain and need a carer a few hours a day to do my shopping, cooking and help me washing was not even acknowledged. The detailed report sent by my doctor was also not acknowledged.  I paid a carer and a cleaner twice a week with my DLA, now I have to be on my own and some days I can’t even get up now, don’t eat, don’t wash, nothing.

Nobody cares anymore if you are ill, you are a burden nothing else. I could not appeal, not able to go through that again anymore, assessments are a torture

Elizabeth

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