I had to give up my job to care for my husband who has a degenerative condition, he needs to be washed, fed,dressed, taken anywhere. He can walk slowly and for not very long but he is very unstable on his feet and falls very often, also has a lot of muscular pain which can be agony.
The pain keeps him awake at night. He is also very depressed, he tried to kill himself twice by banging his head against the wall, he needs supervision at all times.
Life was hard before but now with PIP he only gets standard care and can’t get a carer or motability any longer. A paramedic from Atos decided that he can look after himself and he is fully mobile.
I used to get Carer’s allowance and my contributions for my pension were paid, now I get nothing and we are both housebound with no car or help to pay a taxi fare, as we live in a rural place. I am 62 with two years contribution to go to have my pension. Now either I leave my husband and find a job or I care for him, live in hell and lose my pension altogether.