I got my PIP assessment back a few days ago

I got my PIP assessment back a few days ago. It makes no mention of the electric wheelchair I use every day because I wasn’t in it when they saw me. My mum drove me, we parked right outside, and I can walk that far. She wrote such things as I looked “well-kempt” and “well-nourished” as well as “no cognitive impairment”. I have ME/CFS and rested days beforehand and afterwards.

She cannot see my pain or my fatigue. She has no idea how I eat or whether I did anything independently. I agree that day I could speak to her for half an hour, but I did lose my train of thought. I am even more annoyed at the “you had no upper or lower limb restrictions” I told her it all caused me pain and I couldn’t lift my arms above my shoulders. I have hyper mobility, no my movement wasn’t restricted!

I’m not on strong pain relief because I have to concentrate and the pain relief did not ever relieve pain!! And I can “plan and follow a journey unaided” but only if someone else is with me the first few times and I have my phone so I can quickly contact someone for support.. I really need mobility part of PIP and I’m on the edge of daily living due to everything causing pain and fatigue but that theoretically it is all possible..

Lily

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