The claiming process, certainly for PIP & ESA is beyond tortuous, and we all know that we are going to have to appeal the original decision. I have had 2 ESA, 2 DLA and 1 PIP appeal in the last 7 years. After my 1st appeal the strain caused me to attempt suicide, and i nearly succeeded. I have won all 5 appeals.
The housing situation, leaving people like me trapped in an unsuitable house that isn’t accessible for my wheelchair, and I sleep on a sofa in a knock-through living room that leads to the kitchen and bathroom. Due to my lack of privacy I had to be discharged from the Bladder & Incontinence service as I just couldn’t self-catheterise when I needed to.
The fear of going through appeals again when our area is moved to Universal Credit is palpable and I genuinely don’t know if I will be able to cope with it. I need a family-sized disabled access home as my 3 youngest, aged 23, 22 and 20 cannot afford to move out though they are saving for deposits ( I mean renting, not buying, deposits). I have a fairly large area I’m willing to live in but there are no houses ( I still need to be able to retain my GP, and she is flexible about the catchment area, as she is the only 1 medical professional who knows my complex needs and diagnoses)
The cuts to social care mean that we are not allowed a social worker who is retained for our over-reaching and changing needs, having to reapply for assessment with each diagnosis and with each further fall in my health. I have been waiting for 22months for my new assessment.
The whole system is shattered and we are left wading through the shards. It feels, genuinely, like they want us to die, either by our own hands or with our illnesses. Housing, the DWP and Social Care all interweave and are all killing us.
This is just a brief overview. I havent even included my illnesses, which include: Ehlers Danlos Syndrome; Fibromyalgea; Menierre’s Disease; Raynauds Disease; Arthritis in every joint; Severe Anaemia; Lordosis of the spine; Degenerative Disc Disease & Lumbar Arthritis; 2 Hernias and a partial bowel prolapse…