One of the worst experiences I’ve ever had, benefit reforms from DLA to pip. The two assessor pressurised me for 1 hour 35 minutes and kept on dismissing anything that I said that wasn’t on there stupid computer. The worst … Continue reading One of the worst experiences I’ve ever had
In 2017 I undertook some social research in a small town in Buckinghamshire to research was commissioned by the local authority. There were two pieces the first was published however, they did not publish the second piece or really seem … Continue reading I undertook some social research in a small town
I am a housing support worker for older people. Quite honestly I don’t know where to start – should I start with waiting 5 hours for paramedics to come when an elderly person has fallen in the night as it’s … Continue reading I am a housing support worker for older people
I have been severely affected by my moving onto Universal Credit from ESA, also by moving from DLA onto PIP and the changing of Support for Mortgage Interest from being a benefit into a loan. This combined with my health … Continue reading I have been severely affected by my moving onto Universal Credit from ESA
I have been on ESA now for 10 years. So far I have had 5 assessments in that time. I had to rearrange the last one, as on the day my anxiety and stress were so bad that I threw … Continue reading I have been on ESA now for 10 years
As Parent/Carer for my son I have had many challenges over the years keeping my son safe and constantly reminding regarding this he has had many falls and unexplainable issues and I feel safeguarding is not highlighted and accurate enough. … Continue reading As Parent/Carer for my son I have had many challenges
Yes, sadly it is me again. Let down badly this last 2 weeks by the care agency we rely on here. Had to pay my cleaner extra yet again to cover their essential cleans not touched for 2 weeks. Had … Continue reading Let down badly this last 2 weeks by the care agency
I am autistic and also have Ehlers-Danlos Syndrome, as well as OCD with depressive tendencies and Irritable Bowel Syndrome. I have also been receiving treatment within the last six months for PTSD. The cumulative effect of these conditions on my life is extremely inhibiting and debilitating. Despite trying to work, I have lost two jobs in the last ten years due to disability-related poor health.
The Government creation, hand-in-hand with the right wing media, of a hostile environment for disabled people makes my life far, far harder and more stressful than it need be. For example, I spent most of 2017 with my support worker (who I know I’m lucky to have helping me) fighting the DWP and their health assessors to get a decision as to the level of ESA they intended to give me. I have now been put in the support group but I live in fear that at any time this entitlement could be taken from me.
I lost a lot and missed out on so much becoming chronically ill 25 years ago, my daughters growing up, my marriage, the final years of loved ones, my business and career, making positive life choices. But my latest PIP … Continue reading My latest PIP Assessment is the closest to breaking me
25 years of medical neglect, abuse and torture is largely my experience since my spine twisted up 25 years ago. The cause is from an NHS operation I had when 10 years old. It took many years before I got … Continue reading The despair never goes away