Yes, sadly it is me again. Let down badly this last 2 weeks by the care agency we rely on here. Had to pay my cleaner extra yet again to cover their essential cleans not touched for 2 weeks. Had … Continue reading Let down badly this last 2 weeks by the care agency
I am autistic and also have Ehlers-Danlos Syndrome, as well as OCD with depressive tendencies and Irritable Bowel Syndrome. I have also been receiving treatment within the last six months for PTSD. The cumulative effect of these conditions on my life is extremely inhibiting and debilitating. Despite trying to work, I have lost two jobs in the last ten years due to disability-related poor health.
The Government creation, hand-in-hand with the right wing media, of a hostile environment for disabled people makes my life far, far harder and more stressful than it need be. For example, I spent most of 2017 with my support worker (who I know I’m lucky to have helping me) fighting the DWP and their health assessors to get a decision as to the level of ESA they intended to give me. I have now been put in the support group but I live in fear that at any time this entitlement could be taken from me.
I’m a health professional in a specialist community team. I have seen the social issues that are impacting on service users increasing dramatically year on year. Whilst our team is composed of highly skilled therapist’s we find all our resources … Continue reading I’m a health professional in a specialist community team
I lost a lot and missed out on so much becoming chronically ill 25 years ago, my daughters growing up, my marriage, the final years of loved ones, my business and career, making positive life choices. But my latest PIP … Continue reading My latest PIP Assessment is the closest to breaking me
25 years of medical neglect, abuse and torture is largely my experience since my spine twisted up 25 years ago. The cause is from an NHS operation I had when 10 years old. It took many years before I got … Continue reading The despair never goes away
As a young woman living with depression & anxiety since the age of 16, austerity led to my work hours being cut and me becoming dependant on my partner financially which led to our split and me having to move … Continue reading I only survive by borrowing money from friends and family
I have a long term back problem that a neurosurgeon at the royal Hallamshire will not operate on due to the danger of making me incontinent. He stated it is a life long illness for which I take tramadol for … Continue reading Broke down in tears today
I am an autistic person who finds it difficult to get full-time, stable work as a result of my condition. I am fortunate because of the support I have got from my family and the opportunity I was given via … Continue reading I am very lucky I never ended up using a food bank
Have a long term chronic illness, officially recognised as a disability, albeit hidden. Medication keeps me alive, but has some serious side effects, physical & neurological. Had obtained DLA (on appeal), which allowed me to pay for a carer, assisting … Continue reading Living on very reduced means, having had to use food banks
It gets worse, I have been unable to access needed and ongoing health appointments for over 2 years, unless out of desperation I give up the food shopping to go. I have panic attacks due to the stress am living … Continue reading I have been unable to access needed and ongoing health appointments for over 2 years